Great resource for researchers from PCORI
PCORnet® is an innovative, national patient-centered research network funded by the Patient-Centered Outcomes Research Institute (PCORI). This is a collaborative group of networks, including clinical data research networks and patient-powered research networks. One of its major goals is to increase quality and efficiency in research, uniting data from patients, clinicians, and systems. The PCORnet Commons is a great place to find valuable tools and resources for researchers.
The WINRS toolkit Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is now posted on the PCORnet Commons: http://pcornetcommons.org/resource_item/wisconsin-network-for-research-support-winrs-hard-to-reach-patient-stakeholders-an-engagement-guide/