Authored by WINRS
Our Letter to the Editor in Infection Control and Hospital Epidemiology summarizes results from our interviews with patient and caregiver stakeholders on a project funded by the Patient-Centered Outcomes Research Institute (PCORI). Stakeholders described the personal meaning and value of working with researchers and recommended strategies that researchers can use to enhance the experience of lay stakeholders on projects. Click the link below to read the article.
Our article in Narrative Inquiry and Bioethics is a reflection on our experience since 2010 facilitating meetings between research teams and the CARDS®. Over the course of 140 meetings, we have learned a lot about the stereotypes and assumptions that can make it difficult for researchers and people outside academia to communicate openly. This article explores how we use the power of “The Personal” in our meetings — sharing personal stories and values with one another — to move past these stereotypes and build real connections to advance effective, meaningful research.
- Thomas, G. R., Kaiser, B. K., & Svabek, K. (2017). The Power of The Personal: Breaking Down Stereotypes and Building Human Connections. Narrative Inquiry in Bioethics, 7(1), 27-30. doi: 10.1353/nib.2017.0000
Our article in Research in Nursing & Health provides a detailed description of the Community Advisors on Research Design and Strategies (CARDS)®. We describe the participants in the program, processes that ensure productive meetings between the CARDS® and researchers, and the outcomes of the program for researchers and the CARDS®.
- Kaiser, B. L., Thomas, G. R. and Bowers, B. J. (2016), A Case Study of Engaging Hard-to-Reach Participants in the Research Process: Community Advisors on Research Design and Strategies (CARDS)®. Research in Nursing and Health, 40: 70–79. doi:10.1002/nur.21753
Authored by collaborators
This article describes a study on demographic survey questions and participants’ intentions to answer them, leave them blank, or provide an inaccurate response. The authors, WINRS colleagues at the UW-Madison School of Nursing, worked with the CARDS® to develop a tailored introduction to demographic questions and then examined the effect of using the tailored introduction on participants’ intentions.
- Lor, M., Bowers, B. J., Krupp, A., & Jacobson, N. (2017). Tailored explanation: A strategy to minimize nonresponse to demographic items among low-income racial and ethnic minorities. Survey Practice, 10(3). ISSN: 2168-0094
This article, authored by WINRS colleagues at the UW-Madison School of Nursing, describes results from a mixed-methods study that compared participants’ reactions to two different sets of research recruitment materials: a) materials that had been developed by a researcher and approved by an IRB, and b) the same materials, but with revisions recommended by the CARDS®.