University of Wisconsin–Madison

Toolkits

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS)

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a set of planning materials for researchers and others who want to engage hard-to-reach stakeholders as advisors on patient-centered projects, including patient-centered outcomes research (PCOR). Issued under a Creative Commons license, HARPS is available for free download at the HIPxChange website: https://www.hipxchange.org/HARPS

Users of the toolkit can contact WINRS for help adapting the original materials.

Toolkit on Patient Partner Engagement in Research (TOPPER)

Patient partners are people who advise researchers throughout a research project; they include patients, family members, and caregivers. TOPPER contains the complete set of materials used in a three-hour orientation program for patient partners. Materials include a session agenda; a detailed manual for two facilitators to use during the orientation; and 20 supplementary worksheets, exercises, forms, and examples. All of the materials are written in plain language and can be used with low-literacy patient partners.

Issued under a Creative Commons license, TOPPER is available for free download at the HIPxChange website: https://www.hipxchange.org/TOPPER

Users of the toolkit can contact WINRS for help adapting the orientation materials.

For other Stakeholder Engagement resources, please visit the UW HIPxChange website: https://www.hipxchange.org/stakeholderengagmenttools