University of Wisconsin–Madison

Toolkits

Please contact WINRS for help tailoring WINRS toolkits or to request “train-the trainer” programs for staff: winrs@son.wisc.edu

Patient Advisor Toolkit I: Orientation for Patient Advisory Committees (PAT-I)

PAT-I is a comprehensive set of modifiable resources for conducting an orientation with patient advisors. The toolkit provides a complete, step-by-step guide to preparing patient advisors to work effectively with researchers. First published in 2018 and issued under a Creative Commons license, PAT-I is available for free download at the HIPxChange website: https://www.hipxchange.org/PAT-1

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS)

Hard-to-Reach Patient Stakeholders: An Engagement Guide (HARPS) is a set of planning materials for researchers and others who want to engage hard-to-reach stakeholders as advisors on patient-centered projects, including patient-centered outcomes research (PCOR). First published in 2016 and issued under a Creative Commons license, HARPS is available for free download at the HIPxChange website: https://www.hipxchange.org/HARPS

Toolkit on Patient Partner Engagement in Research (TOPPER)

TOPPER, published in 2014, contains materials used in a three-hour orientation program for patient stakeholders. PAT-1 updates TOPPER materials, replacing it as the current WINRS toolkit on orientation for patient advisors. TOPPER remains available for free download at the HIPxChange website: https://www.hipxchange.org/TOPPER

For other Stakeholder Engagement resources, visit HIPxChange: https://www.hipxchange.org/stakeholderengagmenttools