Check it Out: New patient engagement in research article

Article on Research Participants’ Expectations for Medical Care

The CARDS have reviewed many consent forms, providing useful feedback to researchers on making forms easier to understand. What happens when participants do not understand consent forms or have assumptions that are not addressed? Patients may wonder: Will the research team share test results with me? What if researchers find something in my tests? Will they give me access to medical care I wouldn’t otherwise get?

This interesting article, authored by colleagues at the UW-Madison School of Nursing, dives deeper into participant expectations and a possible role for researchers in planning ancillary care for research participants.

Jacobson, N., Krupp, A. and Bowers, B.J. (2016), Planning for Ancillary Care Provision. Journal of Empirical Research on Human Research Ethics. doi: 10.1177/1556264616637961