Article Published on “The Power of The Personal” We were delighted to have a WINRS story published in the latest issue of Narrative Inquiry in Bioethics (Johns Hopkins University Press). “The Power of The Personal: Breaking Down Stereotypes and Building Human Connections” is a reflection on our experience since 2010 facilitating meetings between research teams and the CARDS. Over …
Article on Research Participants’ Expectations for Medical Care The CARDS have reviewed many consent forms, providing useful feedback to researchers on making forms easier to understand. What happens when participants do not understand consent forms or have assumptions that are not addressed? Patients may wonder: Will the research team share test results with me? What …
Newly published articles about the CARDS WINRS created its Community Advisors on Research Design and Strategies (CARDS) program in 2010 with a vision of bringing unheard voices into research. Seven years later, the CARDS are still going strong, meeting twice every month with researchers from UW-Madison and other institutions. How have we managed to sustain …