Vicki Goodman-Strenski Member of the Zgierska Patient and Family Advisory Committee and Stakeholder Advisory Committee since 2017 What is one thing you really like about being a member of a patient advisory committee? I really appreciate how open the researchers and project coordinators are with the patients on the committees. You can tell that they’re …
Article Published on “The Power of The Personal” We were delighted to have a WINRS story published in the latest issue of Narrative Inquiry in Bioethics (Johns Hopkins University Press). “The Power of The Personal: Breaking Down Stereotypes and Building Human Connections” is a reflection on our experience since 2010 facilitating meetings between research teams and the CARDS. Over …
Over-treatment of thyroid cancer and shared decision-making Lead Researcher: Susan C. Pitt, MD, MPHS; UW-Madison School of Medicine and Public Health What is the focus of your research? Our research focuses on the over-treatment of thyroid cancer. Specifically, we are examining the role of patient-provider communication and shared decision-making. We investigate both the cognitive and …
Gibril Jarjue Member of the Goodman CARDS since 2012 What is one thing you really like about being a member of the CARDS at Goodman? CARDS seem like family to me. There’s camaraderie and mutual respect, and a lot of understanding in the way we communicate – talking to each other and to our guests. …
Directory of Resources for Researchers Would you like to know more about resources available to researchers at the UW-Madison? The Office of Campus Cores (within the Office of the Vice Chancellor for Research and Graduate Education) recently launched an online directory of resources that might be useful to research teams. You can access the directory …
Preventing misuse of OTC medications by older adults Lead Researcher: Michelle Chui, PharmD, PhD; UW-Madison School of Pharmacy What is the focus of your research? The goal of our current AHRQ funded research grant is to prevent the misuse of over-the-counter medications by older adults by implementing a system-redesign intervention in community pharmacies. How has …
Mike Arndorfer Member of the Cox Parent Advisory Board from 2014-2017 What is one thing you really like about being a member of a patient advisory committee? The thing I like most about being a member of the patient advisory committee is giving back to the medical community and patient population that has helped us …
New and improved informed consent templates from the Health Sciences IRB As every researcher knows, informed consent documents can be confusing and often difficult for participants to understand. It has been our privilege to collaborate with the Health Sciences IRB Informed Consent Working Group (ICWG) over the past two years as they have worked doggedly …
Article on Research Participants’ Expectations for Medical Care The CARDS have reviewed many consent forms, providing useful feedback to researchers on making forms easier to understand. What happens when participants do not understand consent forms or have assumptions that are not addressed? Patients may wonder: Will the research team share test results with me? What …
Improving Medication Adherence Lead Researcher: Olayinka Shiyanbola, PhD, B.Pharm; UW-Madison School of Pharmacy What is the focus of your research? My research is “patient-centered”. In general, I’m interested in examining patient perceptions, attitudes and roles, as well as investigating how to incorporate perceptions into improving the quality of medication use. My goal is to improve …