New and improved informed consent templates from the Health Sciences IRB As every researcher knows, informed consent documents can be confusing and often difficult for participants to understand. It has been our privilege to collaborate with the Health Sciences IRB Informed Consent Working Group (ICWG) over the past two years as they have worked doggedly …
Article on Research Participants’ Expectations for Medical Care The CARDS have reviewed many consent forms, providing useful feedback to researchers on making forms easier to understand. What happens when participants do not understand consent forms or have assumptions that are not addressed? Patients may wonder: Will the research team share test results with me? What …
Improving Medication Adherence Lead Researcher: Olayinka Shiyanbola, PhD, B.Pharm; UW-Madison School of Pharmacy What is the focus of your research? My research is “patient-centered”. In general, I’m interested in examining patient perceptions, attitudes and roles, as well as investigating how to incorporate perceptions into improving the quality of medication use. My goal is to improve …
WINRS completes 3-year consultation on PCORI-funded project WINRS concluded a 3-year consultation with Elizabeth D. Cox, MD, PhD in the UW-Madison Department of Pediatrics on her study funded by the Patient-Centered Outcomes Research Institute, Family-Centered Tailoring of Pediatric Diabetes Self-Management Resources. The project involved multiple stakeholder boards that advised the research team. WINRS worked with …
Engaging veterans in healthcare research projects at the Minnesota Veterans Administration WINRS completed a 1-month consultation project with a research team at the Minnesota Veterans Administration Healthcare System, led by Laura Meis, PhD, Assistant Professor, Department of Medicine, University of Minnesota. WINRS helped plan the first meeting of a stakeholder engagement panel that will bring the voices …
Communication Between Older Patients and Surgeons Lead Researcher: Margaret “Gretchen” Schwarze, MD, MPP; Department of Surgery, UW-Madison Engagement Coordinators: Jennifer Tucholka and Anne Buffington; Department of Surgery, UW-Madison What is the focus of your research? Our research focuses on improving communication between older patients and their surgeons so that patients can make decisions that align …
Short course on stakeholder engagement in June! The Community-Academic Partnerships program of the Institute for Clinical and Translational Research at the University of Wisconsin-Madison (ICTR-CAP) is holding a two-day short-course on the topic of engaging patients and stakeholders in research. Engaging Patients and Other Stakeholders in Translational Research: Tools and Best Practices for Research Teams …
Learning Healthcare Systems Principal Investigator: Steven Joffe, MD, MPH; Department of Medical Ethics and Health Policy, University of Pennsylvania Co-Investigator: Rachel Grob, M.A., PhD; Center for Patient Partnerships and Department of Family Medicine and Community Health, UW-Madison What is the focus of your research? We are studying Learning Health Systems – that is, what health …
WINRS teams up with Dr. Aleksandra Zgierska for her five-year PCORI grant WINRS is collaborating with Dr. Aleksandra Zgierska, MD, PhD, of the UW-Madison Department of Family Medicine and Community Health on her five-year grant from the Patient-Centered Outcomes Research Institute, “A Comparative Effectiveness Randomized Controlled Trial of Mindfulness Meditation versus Cognitive Behavioral Therapy for …
Newly published articles about the CARDS WINRS created its Community Advisors on Research Design and Strategies (CARDS) program in 2010 with a vision of bringing unheard voices into research. Seven years later, the CARDS are still going strong, meeting twice every month with researchers from UW-Madison and other institutions. How have we managed to sustain …